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Section 8
Back to Reality
Well, that was a TRIP! And we know that IRL, you’re just getting started.
We hope this guide will be an ongoing source of support, knowledge, and resources that makes your journey a little smoother - like a reliable GPS. Bookmark us, come back to visit, and share what you've learned. Caregiving doesn’t have to be a crisis when there’s so much learning, growth, and joy to be found. Let's change the narrative together, one empowered care partner at a time.
You are enough.
You are appreciated.
You are the most super of heroes out there.
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Journal Prompts
What about this trip am I most thankful for?
Did I shy away from any particular topic? Why? How can I prepare to try again?
What did I learn that could benefit me/my person? What actions am I inspired to take as a result of this trip?
What am I still lacking clarity on?
Did this trip teach me anything about what I want for my future? How can I act on those wishes?
What is one new habit I can incorporate to improve my well-being/that of my person?
Resources
Books/Guides
Resources for Specific Types of Dementia
Diverse Caregiver Resources
Clinical Trials and Disease Research
Appendix
Section 1
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How Your Memory Works -- and Why Forgetting Is Totally OK | Lisa Genova | TEDHFCAlzheimer’s Foundation of AmericaHelp for Alzheimer’s FamiliesLewy Body Dementia Resource CenterLewy Body Dementia AssociationThe Association for Frontotemporal DementiaParkinson’s FoundationParkinson’s Disease NetFamily Caregiver AllianceNational Institute of Neurological Disorders and StrokeArchangels
Section 2
Section 3
Section 4
Managing Personality and Behavior Changes in Alzheimer'sAlzheimer's Disease: Caring for Loved Ones with Unpredictable BehaviorCaregiver’s Guide to Understanding Dementia BehaviorsBehavior & Personality ChangesUnderstanding Behaviors as Forms of CommunicationBrain Mind 3 - Alzheimer’s Standard Diagnosis and TreatmentCareVirtueA Guide to Memory Care Day CentersMemory Cafe DirectoryAssisted Living LocatorsEvidence summary: the relationship between oral health and dementiaLaughter on CallHarmony in DementiaBenefits of Using Aromatherapy: Support for Caregivers Every Day and Every WayScent and Memory: How Aromatherapy Benefits Dementia PatientsZinniaGleam in Your Eye
Section 5
Section 6
Section 7
Credits
Special thanks to the following supporters whose time, talent, and expertise made this guide possible:
Ashley Stevens, MSW, LCSWA
David Rosengarten
Derek Lipman
Image Sound & Motion
Kaylee Sterns
Kiki Kouris
Mathew Studio
Jessica Thomas
Lauren Miller Rogen
Matthew Zuraw
Molly Fisher
Nicole Keller George
Sarah Sior Lemmons
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