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Caregiving Resources

Check out HFC’s curated resources for Alzheimer’s family caregivers. This page is continuously updated so we hope this is a helpful resource throughout your caregiving journey.

Featured Resource

Connect with Full Frontal With Sam Bee

Our friends at Samantha Bee Full Frontal are ready to connect with caregivers with a check-in call. The hotline is now open to HFC caregivers daily! Write info@wearehfc.org to learn more.

Monthly Program Calendar

HFC has expanded care and support programming for Alzheimer’s family caregivers in response to COVID-19. In addition to our HFC Online Support Groups.

Download this month’s calendar

Caregiving Resources

HFC has curated a collection of caregiving resources in four categories: Caregiving, Self-Care, Alzheimer’s Information, Brain Health. You can navigate our resources here/below.


Alzheimer’s Focused

When you join the Alzheimer’s Prevention Registry, we’ll send you opportunities to take part in research studies, plus Alzheimer’s news and research updates. Joining is easy and free, and you choose which studies to consider. Your information will remain safe and private. Learn more.

Sharing Global Knowledge To Improve Dementia Care Learn more.

Specializing in caring for those with Alzheimer’s and other dementias, the Alzheimer’s Association has links with details on what to expect for each disease stage. It also explains behaviors specific to Alzheimer’s and links caregivers to local respite care and activities, legal and financial advice and resources, and local caregiver support groups. Also included are pragmatic stress tests and caregiver message boards. Learn more.

The Alzheimer’s Foundation of America provides online tips, a toll-free hotline, educational and social services, professional development, advocacy and grants, as well as a link for teens to connect, educate others and support caregiving teens. The Foundation puts its stamp of approval on facilities that meet their strenuous standards for good care for those with Alzheimer’s, hosts a national memory screening day and a national brain game challenge. Learn more.

From the Alzheimer’s Association, When facing Alzheimer’s disease, there are a lot of things to consider. Alzheimer’s Navigator helps guide Caregivers to answers by creating a personalized action plan and linking you to information, support and local resources. Learn more.

Resources from the Administration for Community Living on Alzheimer’s disease and other forms of dementia. Learn more.

If you know someone with Alzheimer’s disease or have been diagnosed yourself, this is your community. Alzheimers.net grew out of the need to have a social network that will be a respite, a resource and a way to connect with others who share a common bond. Get authoritative, up-to-date resources and advice from professionals with expertise about Alzheimer’s disease and related dementias. Learn more.

Technology to assist with Alzheimer’s and dementia caregiving. Learn more.

The latest news on Alzheimer’s disease and brain health research. Learn more.

DFA is a national network of communities, organizations and individuals seeking to ensure that communities across the U.S. are equipped to support people living with dementia and their caregivers. Dementia friendly communities foster the ability of people living with dementia to remain in community and engage and thrive in day to day living. Dementia Friendly America is administered by the National Association of Area Agencies on Aging. Learn more.

Serving the US, UK, Canada and Australia. Learn more.

ACL and the Administration on Aging (AoA) funds the NADRC. The goals of the NADRC include, but are not limited to, the provision of expert technical assistance to ACL/AoA and its grantees, as well as making program information and resources available to individuals and organizations outside the Alzheimer’s grantee community. The NADRC website contains a broad range of program-related materials to aid grantees, professionals, and formal and informal caregivers. Materials on the NADRC website include issue briefs, webinar recordings, and related PowerPoint presentations, and numerous tools that support service providers and caregivers. Learn more.

The National Call Center is available to people in 56 states and territories, 24/7, 365 days a year, to provide expert advice, care consultation, information, and referrals at the national and local levels. Trained professional customer service staff and social workers with master’s degrees are available at all times. The Call Center can help with questions about memory problems, how to deal with challenging behaviors, and tips for taking care of someone with Alzheimer’s disease or other forms of dementia. When people call the National Alzheimer’s Call Center, they receive information & referrals, which include local Alzheimer’s Association chapters, ADRCs/AAAs, Adult Protective Services, Alzheimer’s Disease Centers, adult day service, assisted living & other service providers Learn more.

The National Institute on Aging’s National Alzheimer’s Education and Referral Center has a section for Caregivers with tip sheets and resources on behaviors, care, communication, relationships, safety, caregiver health, legal and financial issue and stages. It has an extensive list of publications on caregiving and papers on the latest in Alzheimer’s research. And there’s an easy-to-navigate, thorough and helpful Frequently Asked Questions section. Learn more.

AFTD promotes and funds research into finding the cause, therapies and cures for frontotemporal degeneration. They also offer information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers.Learn more.

LBDA works to raise awareness of Lewy body dementias (LBD), promoting scientific advances, and supporting people with LBD, their families, and caregivers. LBD is a complex disease that can present a range of physical, cognitive, and behavioral symptoms. It dramatically affects an estimated 1.4 million individuals and their families in the United States. To learn more, visit www.lbda.org. Learn more.

Every 65 seconds, a new brain develops Alzheimer’s. Two-thirds of the brains with Alzheimer’s belong to women, and no one knows why that is. The Women’s Alzheimer’s Movement is a nonprofit organization that is dedicated to raising awareness about women’s increased risk for Alzheimer’s and to educating the public — women and men — about lifestyle changes they can make to protect their brain health. Through our annual campaigns and initiatives, we also raise dollars to fund women-based Alzheimer’s research at leading scientific institutions, so that we can better understand this mind-blowing disease and hopefully get closer to a cure. Learn more.

For those caring for a Veteran, resources on dementia care through the VA and information on new research on dementia in Veterans. Learn more.

Working to dramatically increase funding for Alzheimer’s and dementia research Learn more.

YMAA’s missiom is to promote understanding of Alzheimer’s among youth and young adults by providing opportunities to help those affected by the disease. Learn more.


Brain Health

The American Brain Foundation brings researchers and donors together to cure brain diseases and disorders. Learn more.

Annie Fenn, a physician and chef who specializes in cooking for brain health created Brain Health Kitchen to show you all the ways to take care of your brain, based on the latest science. Learn more.

Cleveland Clinic Lou Ruvo Center for Brain Health is a unique and exciting concept in medicine: a medical center dedicated solely to the pursuit of more effective treatments for brain diseases and to the provision of state-of-the-art care for patients affected by these diseases and their families. Learn more.

The Global Brain Health Institute (GBHI) is a leader in the global community dedicated to protecting the world’s aging populations from threats to brain health. GBHI works to reduce the scale and impact of dementia in three ways: by training and connecting the next generation of leaders in brain health through the Atlantic Fellows for Equity in Brain Health program; by collaborating in expanding preventions and interventions; by sharing knowledge and engaging in advocacy. Learn more.

The Global Council on Brain Health (GCBH) is an independent collaborative of scientists, health professionals, scholars and policy experts from around the world working in areas of brain health related to human cognition. The GCBH focuses on brain health relating to peoples’ ability to think and reason as they age, including aspects of memory, perception and judgment. Learn more.

Maria Shriver and the Women’s Alzheimer’s Movement present Move for Minds – an annual initiative that aims to ignite men and women everywhere to make their cognitive health a priority! Held each year in recognition of Alzheimer’s and Brain Awareness Month, these groundbreaking events educate the public on the latest in Alzheimer’s research and on lifestyle changes they can make today to care or their brains and possibly prevent the disease. Learn more.

Dementia encompasses a wide spectrum of disorders impacting memory and cognition. From in- depth diagnostic evaluations to cognitive-fitness training, our approach to optimizing cognitive and memory function is on the leading edge of brain science. Learn more.

A unique husband and wife team on the cutting edge of brain science, Dr. Dean and Dr. Ayesha Sherzai are dedicated to educating people on the simple steps to long-term health and wellness. They hope to acheive this through their work as Directors of the Alzheimer’s Prevention Program at Loma Linda University Medical Center with patients, as well as through online writing, videos, and books. Learn more.

WBHI helps protect women’s brain health by focusing its resources on research to combat brain-aging disorders that disproportionately affect women, and by creating compelling preventative health programs, grounded in science, so there is a greater understanding of the best ways to prolong our cognitive vitality. Learn more.


Caregiving

Facing an uncertain future can be terrifying for all involved, but this big list of Alzheimer’s and dementia resources can help families learn more about how to take action against the disease, how to cope, and learn more about what’s in store. Learn more.

The American Association of Caregiving Youth (AACY) is a non-profit corporation established in 1998, headquartered in Boca Raton, Florida. AACY is the only organization in the US dedicated solely to addressing caregiving youth issues. Vision of AACY – that every youth caring for chronically ill, injured, elderly or disabled family members will achieve success in school and life. Learn more.

AARP’s Caregiving Resource Center provides family caregivers with information, tools and resources to help them on their caregiving journey. The site also provides access to caregiving experts in various issue areas, who provide information through blogs, webinars and one-on-one interaction through social media channels. Family members and friends can find a supportive online community that offers a safe space to connect with others experiencing similar challenges as they care for a loved one. Learn more.

The Administration for Community Living was created around the fundamental principle that older adults and people of all ages with disabilities should be able to live where they choose, with the people they choose, and with the ability to participate fully in their communities. Learn more.

Liliane and Barbara are bringing their unique combination of personal and career experiences and artistic expressions to the cause – that of helping families and caregivers provide a joyful, comfortable and dignified existence for those living with Alzheimer’s and Dementia. Learn more.

AlzYouNeed – technology to assist with Alzheimer’s and dementia caregiving. Learn more.

Caring for a person with Alzheimer’s or dementia often involves a team of people. Whether you provide daily caregiving, participate in decision making, or simply care about a person with the disease — we have resources to help. Learn more.

Our premier caregiving resource is our National Toll-Free Helpline: 866-232-8484. Staffed by compassionate licensed social workers who are specifically trained in dementia care, AFA’s national toll-free helpline provides support, counsel, educational materials and referrals to local resources. AFA’s licensed social workers are also available via Skype (Alzheimers_Foundation), live chat and e-mail. Our National Toll-Free Helpline is open 9 am-9 pm ET Monday-Friday, and 9 am-3 pm ET on Saturday and Sunday. In addition, AFA offers a variety of educational materials and events to help arm caregivers with tips and strategies to help facilitate meaningful living for both the caregiver and the individual living with dementia throughout their journey. Learn more.

Alzheimer’s may slowly cause your loved one’s memories to fade away, but the love you have for each other will always be there. Being a caregiver is a tough job, but it is worth it when it involves helping someone you care for so deeply. The tips and resources on this site are meant to help you navigate this caregiver journey – all you have to do is take it one day at a time. Learn more.

The American Association of Caregiving Youth is geared toward supporting the 1.4 million children and teens who are caregiving for parents and grandparents. They provide counseling and support services, education and advocacy. The Association works directly with schools to help students remain academically successful while they are in the caregiving role. Learn more.

The ARCH (Access to Respite Care and Help) National Respite Network connects caregivers directly to local respite and crisis care services, assists and promotes the development of quality respite and crisis care programs, and advocates for respite in all forums. Learn more.

The experience of caring for a person with dementia can be as varied as the humans holding the role. However, with the progressive, degenerative nature of dementias, caregiver stress is a very real concern. Many caregivers will feel stress, overwhelm and a unique kind of grief coined by Pauline Boss, PhD, called ambiguous loss. Learn more.

The latest news on Alzheimer’s disease and brain health research. Learn more.

End Alzheimer’s without losing another generation. Learn more.

Forge new models of collaboration in biomedical research. Learn more.

The Caregiver Action Network (CAN) (formerly the National Family Caregivers Association) offers practical lists for immediate help with caregiving: patient file checklist, doctors office checklist, how to find a support group, medication checklist, independent living assessment and helpful videos. This easy-to-navigate site takes caregivers through step-by-step processes to help get a handle on caregiving. Learn more.

Caregiver Support Services supports family and professional caregivers through direct services such as trainings on medication, on how to become a personal assistant or a nursing assistant, case management, employ. Learn more.

Through this site, Home Instead Senior Care strives to help you care for your senior loved one through helpful caregiver resources, while helping you spot signs of stress on your emotional and stressful caregiving journey. You’ll get help with family relationships and difficult conversations. You’ll find training and resources on managing conditions such as dementia & Alzheimer’s disease, arthritis, as well as helpful tips and advice on senior housing, safety, nutrition, financial issues, and end-of-life planning. Learn more.

Caregiving.com launched in 1996 to help those who care for a family member or friend. Caregiving.com features the blogs of family caregivers, weekly words of comfort, daily chats, podcasts and free webinars.Through its blog posts, podcasts and video chats, Caregiving.com holds one of the largest online libraries of caregiving stories. Learn more.

Since 2011, we have been building a movement of all ages and backgrounds to transform the way we care. This website offers information on important policy efforts related to caregivers. Learn more.

CaringBridge.org connects families and friends who are experiencing a significant health challenge through private websites where people can share updates and support. Learn more.

CaringKind* is New York City’s leading expert on Alzheimer’s and dementia caregiving. With over 40 years of experience, we work directly with our community partners to develop the information, tools and training to support individuals and families affected by dementia. We offer a CaringKind Helpline (646) 744-2900 run by professional staff; individual and family counseling sessions with licensed social workers; a vast network of support groups; education seminars and training programs; early stage services and a wanderer’s safety program. We believe in the power of caregiving and seek a world where everyone dealing with dementia has the support they need, when they need it. Learn more.

This website offers informative articles about common caregiving concerns for family caregivers, and hosts a directory of services. Learn more.

Ceresti’s care coaching, education and support program makes it easier to navigate the challenges of being a family caregiver. Learn more.

A personalized digital companion for caregivers of people with dementia. Learn more.

With over 20+ years’ experience in healthcare, Jennifer L. FitzPatrick is a keynote speaker and writer. She is also a gerontology instructor at Johns Hopkins University’s Certificate on Aging program. She wrote Cruising Through Caregiving because she sincerely believes all caregivers can reduce their stress if they want to by implementing the book’s strategies. Learn more.

E Care Diary provides the tools and resources to simplify caregiving, including the Care Diary, a medication- and appointment-management tool that helps families store and share their loved ones’ information in a secure, private place. Learn more.

A free nationwide directory assistance service, eldercare locator helps older persons and their family caregivers locate local support resources. It is administered through the National Association of Area Agencies on Aging in Washington, D.C. Learn more.

The Family Caregiver Alliance supports caregivers through information, education, services and research. It also advocates for family caregivers, including a new initiative to foster a consumer movement to improve healthcare quality, coordination and communication for elders and their caregivers. FCA also connects caregivers to services and support groups and has an ongoing story project. FCA’s National Center on Caregiving advances the development of high-quality, cost effective policies and programs for caregivers in every state. The Family Care Navigator is a state-by-state, online guide to help families locate government, nonprofit and private caregiver support programs. Learn more.

To hire trusted care for a loved one in your home, the Home Instead Senior Care network of locally owned franchises has been providing in-home care for elders since 1994, so older adults can age in their home, and caregivers can get a well-earned break. For either a few hours a day or 24-hour care, Home Instead’s caregivers are screened, trained, insured and bonded. Learn more.

The Medicare.gov landing page for caregivers has resources, stories and newsletters about taking care of someone on Medicare. There are easy links to find out if procedures are covered, as well as finding someone to talk to about a multitude of potential nuts-and-bolts questions, from coverage to urgent care to complaints on kidney dialysis. Learn more.

I’m Jennifer Brush, and I’m on a mission to redesign dementia care. Whether I’m assisting a family in-home as they transition through a new diagnosis or leading a live training for a long-term care community, my work centers on one thing and one thing only—focusing on what individuals with dementia CAN do. Learn more.

We bring laughter to Alzheimer’s patients, their families and caregivers. Learn more.

The mission of LeadingAge is to be the trusted voice for aging. Our 5,000+ members and partners include not-for-profit organizations representing the entire field of aging services, 38 state partners, hundreds of businesses, consumer groups, foundations and research partners. LeadingAge is also a part of the Global Ageing Network (formerly IAHSA), which spans 30 countries across the globe. Learn more.

Through Lotsa Helping Hands anyone can create private Web-based communities to organize care and help for people in need, with a group calendar for scheduling and sign-ups for tasks from providing respite to meals, rides and visits. There is a place for announcements, a message board and an information section for families to store and retrieve health data, emergency contacts, medications and legal and financial records for designated members. Learn more.

Life Stories that Enhance Person-Centered Care. Digital life stories, timelines, and caregiver tips. increase caregiver engagement and family satisfaction Learn more.

The National Adult Day Services association connects family caregivers with adult day centers and supports the interests of adult day services’ providers. It provides members with advocacy, educational and networking opportunities, technical assistance and research, and communications services. Learn more.

A coalition of 40 national organizations that conducts research and policy analysis, develops national programs and works to increase public awareness of family caregiving issues across the life span. Learn more.

The National Association of Professional Geriatric Care Managers is a nonprofit professional development organization whose mission is to advance professional geriatric care management through education, collaboration and leadership. Members are also listed on the site, where they can be linked to caregivers. The site explains care management and how to finding the best geriatric care manager, and offers easy links for families to search for one via zip code. Learn more.

The National Domestic Workers Alliance (NDWA) is the nation’s leading voice for dignity and fairness for the millions of domestic workers in the United States. Founded in 2007, NDWA works for respect, recognition, and inclusion in labor protections for domestic workers, the majority of whom are immigrants and women of color. Learn more.

The National Family Caregiver Support Program provides grants to states and territories, based on their share of the population ages 70 and older, to fund a range of supports that help family and informal caregivers to care for their loved one at home for as long as possible. Overseen by the Administration on Aging, the NFCSP provides five types of services: information to caregivers about available services, assistance to caregivers in gaining access to the services, individual counseling, organization of support groups, and caregiver training, respite care, and supplemental services, on a limited basis. These services work with other state- and community-based services to provide a coordinated set of supports for caregivers. Learn more.

For caregivers or elders considering long-term care, this clearinghouse run by the Administration on Aging answers questions about the nature of long-term care, who needs it, how much it costs (with a state-by state breakdown), how it can be paid for, who provides care within long-term care facilities, details on Medicare and Medicaid coverage of long-term care, even legal help for LGBT elders considering long-term care. Not only does the site explain why everyone needs to plan for long-term care, but also it takes one through the step-by-step process. Learn more.

For nearly five decades, the National Partnership has been making life better for women and families. Learn more.

United Hospital Fund’s Next Step in Care program provides information and advice to help family caregivers and healthcare providers plan safe and smooth transitions for patients between care settings. All materials for family caregivers are available in English, Spanish, Russian and traditional Chinese, and they emphasize careful planning, clear communication and ongoing care coordination. Learn more.

Positive Approach® enhances life and relationships of those living with brain change by fostering an inclusive global community. Until There’s A Cure, There’s Care. Using our talents and abilities to develop awareness, knowledge, and skill with all people, that will transform what exists into a more positive dementia care culture. Changing Dementia Care One Mind At A Time. Learn more.

The Rosalynn Carter Institute for Caregiving is an advocacy, education, research and service unit of Georgia Southwestern State University. It has its own training center, caregiving management certificate program, scholarship and fellowship opportunities, as well as caregiver resources. Learn more.

The Caregiver Action Network (CAN) (formerly the National Family Caregivers Association) offers practical lists for immediate help with caregiving: patient file checklist, doctors office checklist, how to find a support group, medication checklist, independent living assessment and helpful videos. This easy-to-navigate site takes caregivers through step-by-step processes to help get a handle on caregiving. Learn more.

A website for caregivers to share their experiences, learned lessons, and perspectives. Learn more.

The DAWN Method® is the person-centered approach to dementia care that trains families and caregivers to recognize the skills dementia does not take away.Judy Cornish, founder of the Dementia & Alzheimer’s Wellbeing Network (DAWN®), created the DAWN Method to share person-centered care and support aging in place. Learn more.

The Deanna Foundation provides financial relief for care-giving to middle class families affected by dementia. We understand the emotional and financial burden this disease places on families caring for their loved one. We strive to ease these burdens by providing emotional support, resources and care-giving grants. Learn more.

Helping family caregivers integrate caregiving with life. Learn more.

The National Association of Professional Geriatric Care Managers is a nonprofit professional development organization whose mission is to advance professional geriatric care management through education, collaboration and leadership. Members are also listed on the site, where they can be linked to caregivers. The site explains care management and how to finding the best geriatric care manager, and offers easy links for families to search for one via zip code. Learn more.

For those caring for a Veteran, resources on dementia care through the VA and information on new research on dementia in Veterans. Learn more.

Run by the U.S. Department of Veterans Affairs, it provides support and services for family caregivers of veterans. Learn more.

The Well Spouse Association provides peer support and education about the special challenges and unique issues facing “well” spouses. Members speak out on their caregiving situations, providing a window into the not-so-well-known world of the estimated 6 million spousal caregivers in America and many more around the world. Learn more.

YouthCare is an in-home activity and memory care program that pairs trained undergraduate and/or graduate student volunteers and older adults with MCI, early-stage Alzheimer’s or dementia. Student volunteers go into the homes of family caregivers and follow a set curriculum designed by the UCLA Longevity Center that provides patients with cognitive stimulating activities and companionship for 3 to 6 hours per week. Learn more.